Response to the House of Commons Education Committee Report on SEND

Special Educational Needs and Disabilities (SEND) is a topic we care about at Stripy Lightbulb CIC as children with M.E/C.F.S fall under the SEND umbrella within their learning environment. We have been waiting for this report to be published and are not surprised to read some of the issues that have been highlighted. Extract from …

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Don’t AssuM.E – Merchandise

Today, we are launching our new merchandise range – Don’t assuM.E. Assumptions about Myalgic Encephalomyelitis (otherwise known as Chronic Fatigue Syndrome) are rife, create stigma, and can cause additional problems for the global M.E/C.F.S community. Some of these false assumptions are listed below: Don’t assuM.E that you know what M.E/C.F.S is because you read about …

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‘Just Google It’

It is widely accepted that people use Dr. Google to try to diagnose their health complaints, look for advice, or seek signposting for support. However, should Google be used by professionals with a duty of care over Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) patients to establish what the condition is and how they should be supporting …

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