The Need for Education
The Current Situation (2019)
- 250,000+ M.E./C.F.S. patients in the UK (Unreliable statistics due to misdiagnosis and a lack of research)
- 17-30 million M.E./C.F.S. patients worldwide. The Open Medical Foundation estimate that 91% of people affected by the condition are not yet diagnosed.
- Patients with ‘mild severity’ have the potential to remain in work but many are having to leave employment due to a lack of suitable working practices. These same people are struggling to prove eligibility for any kind of disability allowance and are finding themselves in dire financial situations.
- There is an unhelpful lack of flexibility in terms of working practices;
- There is a substantial level of stigma and disbelief surrounding the condition;
- Students are dropping out of school, college or university because educational professionals do not know how to support within existing disability frameworks;
- There is a lack of awareness, it is not ‘just tiredness’;
- The M.E./C.F.S community is a large economic burden.
Why does the M.E./C.F.S. Community need help?
- It’s an ‘invisible’ condition and is surrounded by stigma;
- Lack of support from outside the circle of immediate family and close friends;
- Feeling of being ‘left’, no treatment or support;
- Worrying suicide rate;
- Increased knowledge and awareness= Increased research funding;
- Financial difficulty – Keep M.E./C.F.S. patients in work where possible;
- We need the wider community to fight alongside us to tackle the global M.E./C.F.S. health crisis.
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We’re creating a way that Schools can get ‘FREE’ M.E./C.F.S. training, supported by businesses. By signing up schools have the opportunity to have two ‘seats’. One ‘seat’ for the head teacher and one ‘seat’ for the SEN teacher.Find out more about Light Up