Stripy Lightbulb CIC’s Comment on the Welsh Government’s Announcement: Funding Boost to Open Long COVID Clinics to People with Long-Term Conditions

In response to the Welsh Government’s announcement on ‘Funding boost to open long COVID services up to people with long term conditions‘, Sally Callow, Managing Director of Stripy Lightbulb CIC says ‘Whilst we appreciate the need for increased spending on Long COVID and other post-viral conditions, we strongly oppose the suggested ‘opening up’ of existing …

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Written Evidence Submission to the Plan for Jobs and Employment Inquiry

In January 2023, Stripy Lightbulb CIC submitted written evidence to the ‘Plan for Jobs and Employment Inquiry’. We did so because, despite Long COVID organisations giving evidence, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome had not been mentioned within this Inquiry. As half of Long COVID cases meet M.E/C.F.S diagnostic criteria we strongly felt that M.E/C.F.S needed to …

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M.E/C.F.S Training Day in Cardiff

Temple of Peace and Health, Cardiff – Here we come! As a Community Interest Company that works for the benefit of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) community, we are delighted to be holding our FIRST EVER face to face CPD accredited training event. We were founded, and are managed. by a person who lives …

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2022: Year in Review

As our working year draws to a close, we have been reflecting on our achievements of 2022 and look ahead to hopefully brighter times in 2023. We started the year by warning exercise professionals about Post Exertional Malaise in M.E/C.F.S and Long COVID, as we discussed in the related blog post, this particular issue was …

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Populism, Journalistic ‘Balance’, and M.E/C.F.S.

This blog is being written in response to Emily Maitlis’ lecture at the James MacTaggart Memorial Lecture¬†¬† of 24th August 2022, her lecture resonated with us and the issues she raised, in relation to journalism and politics, reminded us of some of the issues the M.E/C.F.S community faces in the UK with the UK Government, …

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COVID19 Questionnaires, PEM/PESE, and the Office for National Statistics

As our learners will know, there is limited data available on the prevalence of M.E/C.F.S in the UK and internationally. Much has been said about the opportunity Long Covid brings in terms of data collection and research opportunities. Stripy Lightbulb CIC strongly believes that the Office of National Statistics ‘COVID19 questionnaires’, that research Long Covid, …

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