M.E./C.F.S. Patient Information Resource
This is an informal, easy to understand, information resource for people recently diagnosed as having M.E./C.F.S. or people who are still going through a diagnostic process and have been told by Doctors that M.E./C.F.S. is a possibility.
There is a lot of false information about M.E./C.F.S. online. We have weeded through the misinformation for you. Our resource is well researched and uses only reliable sources. Our resource includes videos, a game, and up to date information from around the world.
This resource answers questions such as:
- What is M.E./C.F.S.?
- How are patients diagnosed?
- Why is there no diagnostic test for M.E./C.F.S.?
- Are there any effective treatments for M.E./C.F.S.?
- Does M.E./C.F.S. kill?
- How can patients look after their own health?
The resource has been created by an M.E./C.F.S. patient for the benefit of M.E./C.F.S. patients.
Get our Information Resource
In the resource, you will find everything you need to know about your illness. You will be able to see for yourself what M.E./C.F.S. is (symptoms, severity, etc.).
We have used extracts from our e-training that are specific to the patient experience and have used the structure of our e-learning platform to make the information easy to navigate.
We have adopted a ‘Pay What You Can Afford’ payment scheme.
Our information resource is free to those who cannot afford to pay but we would ask everybody else to pay £5.
When deciding how much to pay, please remember that, as a CIC, we give 50% of our surplus to Cure M.E. for biomedical research.Get the M.E./C.F.S. Patient Information Resource
About Stripy Lightbulb CIC
We are a CPD accredited training company who provide training on M.E./C.F.S. for the professionals who have a duty of care over patients. 50% of our surplus is funding M.E./C.F.S. research. We are a not for profit company that works for the benefit of the global M.E./C.F.S. community.
During the creation of our e-training we became very aware that a lot of the research studies and information that has been floating around the patient community on social media for years is very hard to find online.
Charity websites do not have (or need to have) all of the information needed by new M.E./C.F.S. patients. We spent months searching hundreds of websites from around the globe to give a well-researched and balanced overview of the M.E./C.F.S. patient experience.