Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome (C.F.S.) is a disability without effective treatment options. Patients are finding that a lack of adequate support and understanding are adding to the impact of the condition on their daily lives.
Globally, most M.E./C.F.S. charities opt for ‘M.E., otherwise known as Chronic Fatigue Syndrome’. The current agreed consensus (2019) is to refer to the condition as M.E./C.F.S. Stripy Lightbulb CIC is following the lead of charities.
Stripy Lightbulb CIC steers clear of the confusion and educates about the true nature of the condition: What the illness feels like for patients, regardless of the diagnostic criteria it was diagnosed with or what name it uses.
Not only are the M.E./C.F.S. community battling against an illness without having a clue what we have been struck down with, but we also have to deal with ill treatment in the form of disbelief and lack of empathy from those who have a duty of care over us.
M.E is the last common illness that very little is known about, globally. In the UK, 250,000 have been diagnosed with the condition, but there are many thousands more who are still going through a long drawn out period of diagnosis. 17-30 million people have the condition worldwide and it is a global health crisis.
THERE IS NO EFFECTIVE TREATMENT FOR M.E./C.F.S.
M.E./C.F.S. is a complex neurological condition that is surrounded by political issues that make getting this severely debilitating illness recognised one of the M.E community’s biggest struggles.
Many medical professionals have been slow to recognise the illness as valid and that has caused so much harm to the patient community. Worldwide, great work is being done by researchers to establish a globally-accepted diagnostic criteria and to discover effective treatments for the condition but these things take time and no significant breakthroughs have been made YET. Momentum is building though and everyone at Stripy Lightbulb CIC is hoping that exciting developments will be made soon.