What is #MPDoYourJob4ME?

M.E/C.F.S. patients are dying as a direct result of neglect and inadequate care within UK hospitals.

We are a social enterprise that uses education to bring about improved care for people living with M.E./C.F.S. Stripy Lightbulb CIC is not an advocacy platform (usually).

Too many preventable deaths are happening right now and we believe this is as a direct result of the poor knowledge-base on the disease within the medical profession.

#MPDoYourJob4ME is an extension of the #DontLetMEDie Emergency Protest of the 8th March 2023

What do you do when medical establishments are not listening and usual methods of recourse are not working?

We have collaboratively created ‘Politician’s Guide: How to Advocate For a Constituent With Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./C.F.S.) to Advocate for Severe M.E. Patients‘ (PDF 275kb).

We are asking people living with M.E./C.F.S. and community allies to tag their MP on social media alongside a link to the guide and tell them why this campaign is important using the #MPDoYourJob4ME.

You could also send the guide to your MP via email. You can use Write to Them to find your MP’s contact details.

Please send this guide to your MP (or equivalent in devolved nations), encourage them to read it and keep it on file. Help to tackle the neglect and very poor care experienced by severe M.E./C.F.S. patients in hospital settings.

#MPDoYourJob4ME Updates

#MPDoYourJob4ME Explainer Video

#DontLetMEDie Podcast

#MPDoYourJob4ME Resources

#MPDoYourJob4ME is a collaboration between Stripy Lightbulb CIC, The Chronic Collaboration and ME Foggy Dog, with input from Alison Head.