Why Does Stripy Lightbulb CIC Exist?
Our training will raise awareness and understanding of M.E./C.F.S. – something which is desperately needed!
The Current Situation (2019)
- 250,000+ M.E./C.F.S. patients in the UK (Unreliable statistics due to misdiagnosis and a lack of research)
- 17-30 million M.E./C.F.S. patients worldwide. The Open Medical Foundation estimate that 91% of people affected by the condition are not yet diagnosed.
- Patients with ‘mild severity’ have the potential to remain in work but many are having to leave employment due to a lack of suitable working practices. These same people are struggling to prove eligibility for any kind of disability allowance and are finding themselves in dire financial situations.
- There is an unhelpful lack of flexibility in terms of working practices;
- There is a substantial level of stigma and disbelief surrounding the condition;
- Students are dropping out of school, college or university because educational professionals do not know how to support within existing disability frameworks;
- There is a lack of awareness, it is not ‘just tiredness’;
- The M.E./C.F.S community is a large economic burden.
Why does the M.E./C.F.S. Community need help?
- It’s an ‘invisible’ condition and is surrounded by stigma;
- Lack of support from outside the circle of immediate family and close friends;
- Feeling of being ‘left’, no treatment or support;
- Worrying suicide rate;
- Increased knowledge and awareness= Increased research funding;
- Financial difficulty – Keep M.E./C.F.S. patients in work where possible;
- We need the wider community to fight alongside us to tackle the global M.E./C.F.S. health crisis.
What are the Benefits to YOU?
- Keep hold of talented staff;
- You will be able to adequately support patients you have a duty of care over;
- Being informed prevents harm being done to patients and keeps them engaged;
- You save money on training and recruitment by keeping existing staff;
- Become ‘invisible disability friendly’;
- Flexible working = happy staff.
- Improve attendance;
- Improve relationships with students, parents, and M.E./C.F.S. affected staff;
- You will be able to adequately support M.E./C.F.S. patients over whom you have a duty of care;
- Being informed prevents harm to M.E./C.F.S. patients;
- Reduce complaints;
- Become ‘invisible disability friendly’.
- Improve relationships with patients, build a level of trust and respect;
- Reduce complaints;
- Create a ‘safe’ environment for M.E./C.F.S. patients;
- Know that patients are not being harmed by inadequate support and a lack of education.
What can you expect from the course?
Stripy Lightbulb CIC’s training is an original concept, there is no equivalent worldwide. We are a unique social enterprise that has been created by a person with M.E./C.F.S. for the benefit of the M.E./C.F.S. community.
- What is M.E./C.F.S? (Including history, context, wider social/economic/political issues):
- Differences in severity;
- How you can support M.E./C.F.S. patients;
- What suitable adjustments can be made?
- What level of support is appropriate?
- Why non-disclosure is important;
- The course contains industry-specific modules;
- The courses are CPD accredited.
The Cost of the Course
Single seats are £89, but there are Group Discounts:
10-24 Seats – 10% Discount.
25-49 Seats – 25% Discount.
If you require over 50 seats, please contact us and we will provide a bespoke quote.