Why Does Stripy Lightbulb CIC Exist?
Our training will raise awareness and understanding of M.E./C.F.S. – something which is desperately needed!
The Current Situation (2019)
- 250,000+ M.E./C.F.S. patients in the UK (Unreliable statistics due to misdiagnosis and a lack of research)
- 17-30 million M.E./C.F.S. patients worldwide. The Open Medical Foundation estimate that 91% of people affected by the condition are not yet diagnosed.
- Patients with ‘mild severity’ have the potential to remain in work but many are having to leave employment due to a lack of suitable working practices. These same people are struggling to prove eligibility for any kind of disability allowance and are finding themselves in dire financial situations.
- There is an unhelpful lack of flexibility in terms of working practices;
- There is a substantial level of stigma and disbelief surrounding the condition;
- Students are dropping out of school, college or university because educational professionals do not know how to support within existing disability frameworks;
- There is a lack of awareness, it is not ‘just tiredness’;
- The M.E./C.F.S community is a large economic burden.
Why does the M.E./C.F.S. Community need help?
- It’s an ‘invisible’ condition and is surrounded by stigma;
- Lack of support from outside the circle of immediate family and close friends;
- Feeling of being ‘left’, no treatment or support;
- Worrying suicide rate;
- Increased knowledge and awareness= Increased research funding;
- Financial difficulty – Keep M.E./C.F.S. patients in work where possible;
- We need the wider community to fight alongside us to tackle the global M.E./C.F.S. health crisis.
What are the Benefits to YOU?
- Keep hold of talented staff;
- You will be able to adequately support patients you have a duty of care over;
- Being informed prevents harm being done to patients and keeps them engaged;
- You save money on training and recruitment by keeping existing staff;
- Become ‘invisible disability friendly’;
- Flexible working = happy staff.
- Improve attendance;
- Improve relationships with students, parents, and M.E./C.F.S. affected staff;
- You will be able to adequately support M.E./C.F.S. patients over whom you have a duty of care;
- Being informed prevents harm to M.E./C.F.S. patients;
- Reduce complaints;
- Become ‘invisible disability friendly’.
- Improve relationships with patients, build a level of trust and respect;
- Reduce complaints;
- Create a ‘safe’ environment for M.E./C.F.S. patients;
- Know that patients are not being harmed by inadequate support and a lack of education.
What can you expect from the course?
Stripy Lightbulb CIC’s training is an original concept, there is no equivalent worldwide. We are a unique social enterprise that has been created by a person with M.E./C.F.S. for the benefit of the M.E./C.F.S. community.
- What is M.E./C.F.S? (Including history, context, wider social/economic/political issues):
- Differences in severity;
- How you can support M.E./C.F.S. patients;
- What suitable adjustments can be made?
- What level of support is appropriate?
- Why non-disclosure is important;
- The course contains industry-specific modules;
- The courses are CPD accredited.
The Cost of the Course
Single seats are £89, but there are Group Discounts:
25+ Seats – 10% Discount.
If you require over 50 seats, please contact us and we will provide a bespoke quote.
Sponsored Training for Schools
We’re creating a way that Schools can get ‘FREE’ M.E./C.F.S. training, supported by businesses. By signing up schools have the opportunity to have two ‘seats’. One ‘seat’ for the head teacher and one ‘seat’ for the SEN teacher.Find out more about Light Up