For years, Stripy Lightbulb CIC has been raising concerns about the way national physical activity messaging overlooks people for whom exercise is not universally safe. This is not a new issue for the M.E./C.F.S. community to deal with. In fact, …
We’ve successfully applied to take part in an upcoming NHS-backed focus group looking at urgent care services across Hampshire and the Isle of Wight, including NHS 111, GP access, pharmacies, and urgent care centres. Sally Callow will be attending as …
Stripy Lightbulb CIC recently contributed to The Canary’s investigation into the Department for Work and Pensions’ Access to Work scheme and its treatment of people living with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (M.E./C.F.S). What that investigation exposed is troubling, not …
People across Hampshire are being invited to share their real experiences of local health and social care, and your voice could help shape how services improve in the years ahead. Stripy Lightbulb CIC is working with Healthwatch Hampshire and Action …
Recently, as we began analysing Ministry of Justice (MoJ) datasets for a current research project, one issue quickly stood out: the way M.E./C.F.S. is categorised within these systems simply didn’t align with what we know about the condition. Instead of …
Human Resources (HR) and Occupational Health (OH) teams play a decisive role in ensuring that employees with M.E./C.F.S. are supported safely and effectively in their workplaces. When the condition is understood correctly, organisations benefit from improved retention, reduced sickness absence, …
As we step into 2026, we’ve intentionally chosen a slower, more reflective start. After nearly eight years of continuous work, it felt important to pause and take stock of where we are, what we’ve achieved, and where our efforts have …
On 9th December 2025, we are holding our one-day campaign #SCCforME to demand fairness and clarity for people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./C.F.S.). The Severe Conditions Criteria (S.C.C.) is meant to protect those who are not expected to …
Yesterday, Chancellor Rachel Reeves delivered her Autumn Budget, a speech in which she referred to “working people” at least seven times. Phrases such as “I will always put working people first” and “money off bills, and in the pockets of …
For people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./C.F.S), the UK benefits system presents a unique and often unfair challenge. While the condition is widely recognised as long-term and significantly disabling, it is not automatically treated as lifelong …
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