Hi, Our National Lottery Community Fund-Wales funded M.E/C.F.S training day was 3 weeks ago and, now that the dust has settled, we can safely say that it was a resounding success! It was 3 years in the making after our plans for face-to-face training were shelved during the first 3 years of the pandemic but …
In response to the Welsh Government’s announcement on ‘Funding boost to open long COVID services up to people with long term conditions‘, Sally Callow, Managing Director of Stripy Lightbulb CIC says ‘Whilst we appreciate the need for increased spending on Long COVID and other post-viral conditions, we strongly oppose the suggested ‘opening up’ of existing …
In January 2023, Stripy Lightbulb CIC submitted written evidence to the ‘Plan for Jobs and Employment Inquiry’. We did so because, despite Long COVID organisations giving evidence, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome had not been mentioned within this Inquiry. As half of Long COVID cases meet M.E/C.F.S diagnostic criteria we strongly felt that M.E/C.F.S needed to …
People living in the UK, over the past 9 months or so, will have seen increasing amounts of rhetoric in the media about ‘economically inactive’ people and their negative impact on the economy. Whilst the Conservative Party have been the target of a lot of the backlash, a significant amount of this rhetoric has come …
Temple of Peace and Health, Cardiff – Here we come!# CLICK HERE TO BOOK YOUR PLACE As a Community Interest Company that works for the benefit of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) community, we are delighted to be holding our FIRST EVER face to face CPD accredited training event. We were founded, and are …
As our working year draws to a close, we have been reflecting on our achievements of 2022 and look ahead to hopefully brighter times in 2023. We started the year by warning exercise professionals about Post Exertional Malaise in M.E/C.F.S and Long COVID, as we discussed in the related blog post, this particular issue was …
For the past 11 months, Stripy Lightbulb CIC has been working to get M.E/C.F.S included within the official COVID19 narrative in the UK. It is now December 2022 and yet the UK Government has still not acknowledged that COVID19 has triggered many thousands of cases of M.E/C.F.S. We have been working to find out why …
This post is an update to our blog post – ‘COVID19 Questionnaire, PEM/PESE, and the Office For National Statistics‘ This is an ongoing issue that we have been working on for a while. Please read the blog mentioned above to see information on our work so far. As we wrote at the bottom of the …
This blog is being written in response to Emily Maitlis’ lecture at the James MacTaggart Memorial Lecture of 24th August 2022, her lecture resonated with us and the issues she raised, in relation to journalism and politics, reminded us of some of the issues the M.E/C.F.S community faces in the UK with the UK Government, …
As our learners will know, there is limited data available on the prevalence of M.E/C.F.S in the UK and internationally. Much has been said about the opportunity Long Covid brings in terms of data collection and research opportunities. Stripy Lightbulb CIC strongly believes that the Office of National Statistics ‘COVID19 questionnaires’, that research Long Covid, …