Today is Social Enterprise Day – a moment to raise awareness of our pioneering business model and celebrate the more than 100,000 social enterprises in the UK working to benefit people and planet. Social enterprises are businesses that trade for a social or environmental purpose. Like any other business, we look to make a profit, …
We know that Governments simply go from election promise to election promise, whatever works on the doorstep seem to become priorities and manifesto pledges. Long term planning doesn’t seem to be a skill politicians have. The issue of palliative-style care and Social Care needs were raised within our collaborative work with National Voices who were …
There may not be any effective treatments or cures for Myalgic Encephalomyelitis also sometimes known as Chronic Fatigue Syndrome (M.E/C.F.S.), but people living with M.E/C.F.S find themselves on hospital estates for a variety of reasons including appointments for tests for M.E/C.F.S-related symptoms, tests/treatments for other illnesses, or in their role as a parent/guardian/partner of a …
COMMENT The Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community already stands at an estimated 1.25 million people in the UK. The majority of whom developed M.E/C.F.S as a direct result of catching COVID19. How much more will our patient numbers surge whilst COVID19 is allowed to run unchecked? 2 million by the end of 2024? …
Hi, Our National Lottery Community Fund-Wales funded M.E/C.F.S training day was 3 weeks ago and, now that the dust has settled, we can safely say that it was a resounding success! It was 3 years in the making after our plans for face-to-face training were shelved during the first 3 years of the pandemic but …
In response to the Welsh Government’s announcement on ‘Funding boost to open long COVID services up to people with long term conditions‘, Sally Callow, Managing Director of Stripy Lightbulb CIC says ‘Whilst we appreciate the need for increased spending on Long COVID and other post-viral conditions, we strongly oppose the suggested ‘opening up’ of existing …
In January 2023, Stripy Lightbulb CIC submitted written evidence to the ‘Plan for Jobs and Employment Inquiry’. We did so because, despite Long COVID organisations giving evidence, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome had not been mentioned within this Inquiry. As half of Long COVID cases meet M.E/C.F.S diagnostic criteria we strongly felt that M.E/C.F.S needed to …
People living in the UK, over the past 9 months or so, will have seen increasing amounts of rhetoric in the media about ‘economically inactive’ people and their negative impact on the economy. Whilst the Conservative Party have been the target of a lot of the backlash, a significant amount of this rhetoric has come …
Temple of Peace and Health, Cardiff – Here we come!# CLICK HERE TO BOOK YOUR PLACE As a Community Interest Company that works for the benefit of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) community, we are delighted to be holding our FIRST EVER face to face CPD accredited training event. We were founded, and are …
As our working year draws to a close, we have been reflecting on our achievements of 2022 and look ahead to hopefully brighter times in 2023. We started the year by warning exercise professionals about Post Exertional Malaise in M.E/C.F.S and Long COVID, as we discussed in the related blog post, this particular issue was …