Covid19 Vaccine and Informed Consent

To be clear, we are not anti-vaccine and welcome the Covid19 vaccines as part of the pandemic solution. In this blog, we ask how patients can give ‘informed consent’ when so little is known about the long-term effects of the Covid19 vaccine and how the vaccine will affect patients already diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue …

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Our Complaint About Good Morning Britain re. 20th August Segment on Long Covid

Anyone who follows Stripy Lightbulb on our social media platforms will have seen that we submitted complaints to Good Morning Britain and Ofcom about comments made by Dr. Hilary Jones on 20th August 2020 about Long Covid. To anyone not familiar with the world of chronic illness, and specifically M.E/C.F.S, these comments would have seemed …

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Long Covid – Scaremongering Avoidance or Deliberate Lack of Information?

It came to our attention yesterday that staff of a NHS Trust in the South of England were not aware that Covid-19 could be chronic in some patients. During a Zoom ‘Community Engagement Forum’ conversation, our MD Sally Callow introduced herself as an M.E patient advocate and Long Covid patient. The other Zoom attendees asked …

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Could Coronavirus Cause A Future Spike In M.E/C.F.S Cases?

This blog is entirely hypothetical but it is a situation that is plausible. M.E/C.F.S can be triggered by a virus. The current COVID-19 outbreak is heading towards being a global pandemic and this got us wondering if this will cause a spike in newly diagnosed M.E/C.F.S patients within the next few years? Or at the …

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