We Are A Good Cause In Need of Your Help – Portsmouth Community Lottery

Stripy Lightbulb CIC provides a much needed and important service for the community. We need your help so we can expand our service and educate more professionals about a poorly understood disease – M.E/C.F.S. We have just been accepted onto the Portsmouth Community Lottery as a ‘good cause’! We’d love it if you could support us …

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FAO: Exercise Professionals – When Overload Principle Can Be Harmful….

#MindsetReboot Campaign Exercise is a good thing……Right? Most people need more physical activity……Agreed “There is no situation, there is no age, and no condition where exercise is not a good thing” This was stated by Sir Chris Whitty, Chief Medical Advisor, during a Covid19 press briefing during lockdown in 2020. It has been quoted in …

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Long Covid, M.E/C.F.S, and Exercise Professionals

This blog post is a transcript of this podcast Sally  Hello, welcome to Lightbulb Moments. Today I’m talking to Stripy Lightbulb CIC Director Chantelle Martin. In her day job, Chantelle is an Occupational Therapist, but she has studied for an Exercise and Sports Science degree. She has also taken additional exercise training courses level three …

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Paradigm Shift? Possibly not.

Unless you have been enjoying a desert island island get-away with no wifi or phone coverage for the past few years and have either not seen any UK press and media, or any communications from M.E charities and advocacy groups, you will know that the National Institute of Care and Excellence (NICE) in the UK, …

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Long Covid – Struggling In The Aftermath of M.E/C.F.S Neglect and Stigma

Photo is of a neglected and falling down wooden house.

Our Managing Director Sally Callow, as a M.E/C.F.S and Long Covid patient, M.E/C.F.S patient advocate, and MD of an online training platform about M.E/C.F.S, is currently collaborating with local public health teams working on their Long Covid strategy. The illnesses are very similar in terms of overlapping symptoms and patient experience (including stigma) and a …

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General Medical Council Complaint Outcome

In her capacity as Managing Director of an online training company about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S), our M.D. Sally Callow complained to various organisations including the General Medical Council about a BBC Breakfast segment on Long Covid on 2nd February 2020, specifically about the false information on recovery through exercise and ‘positive thinking’ for patients …

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DWP Campaign – Update

Message from our Managing Director Sally Callow My Board and I have decided to discontinue our DWP campaign, thank you so much to everyone who has supported us with this endeavour for the past 3 months. This is the document that caused us to launch our DWP campaign, the document was obtained via Freedom of …

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Search Engines- What Do People Want To Know About M.E/C.F.S?

Visual representation of keywords

We know there is an increased interest in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the moment due to the overlapping symptoms of Long Covid and M.E/C.F.S. Obviously, M.E/C.F.S is a disease that we have an immense interest in and are educating professionals about the disease to bring about social change for patients, but most of the …

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DWP Campaign – ‘Mild’ M.E/C.F.S, Employment and Benefits

Stripy Lightbulb CIC has been working hard on a campaign to make the Department of Work and Pensions in the UK aware of the difficulties ‘mild’ (possibly also low-end moderate) M.E/C.F.S patients face in terms of gaining or remaining in employment, and what the alternative means in terms of benefits. One element of this campaign …

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