Response to the House of Commons Education Committee Report on SEND

Special Educational Needs and Disabilities (SEND) is a topic we care about at Stripy Lightbulb CIC as children with M.E/C.F.S fall under the SEND umbrella within their learning environment. We have been waiting for this report to be published and are not surprised to read some of the issues that have been highlighted. Extract from …

Read moreResponse to the House of Commons Education Committee Report on SEND

Don’t AssuM.E – Merchandise

Today, we are launching our new merchandise range – Don’t assuM.E. Assumptions about Myalgic Encephalomyelitis (otherwise known as Chronic Fatigue Syndrome) are rife, create stigma, and can cause additional problems for the global M.E/C.F.S community. Some of these false assumptions are listed below: Don’t assuM.E that you know what M.E/C.F.S is because you read about …

Read moreDon’t AssuM.E – Merchandise

‘Just Google It’

It is widely accepted that people use Dr. Google to try to diagnose their health complaints, look for advice, or seek signposting for support. However, should Google be used by professionals with a duty of care over Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) patients to establish what the condition is and how they should be supporting …

Read more‘Just Google It’

What Will You Learn? Learning Aims and Objectives

Our courses have been extensively researched and contain up-to-date information from within the global M.E./C.F.S community which includes patients, patient advocates, charities, scientists and researchers. Learners will benefit from the insider knowledge Managing Director Sally Callow brings as a patient (12 years) and from being a global M.E./C.F.S advocate since 2014. In this blog, we …

Read moreWhat Will You Learn? Learning Aims and Objectives

Contaminated Blood

In general, the wider community doesn’t take the global Myalgic Encephalomyelitis/Chronic Fatigue Syndrome crisis as seriously as it should. Yes, it’s a crisis. In the UK alone, there are 250,000+ patients with an economic burden of over £3.3 BILLION per year (2017 statistics). Worldwide, most countries have not done any research into the condition or …

Read moreContaminated Blood

M.E/C.F.S and Employment

This blog is inspired by an online conversation I had this evening with an employment specialist. His comment wasn’t taken negatively, it just made me aware that much more awareness is needed as to why Stripy Lightbulb CIC is needed. We were discussing M.E/C.F.S patients and employment, I was explaining that only patients with a …

Read moreM.E/C.F.S and Employment