General Medical Council Complaint Outcome

In her capacity as Managing Director of an online training company about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S), our M.D. Sally Callow complained to various organisations including the General Medical Council about a BBC Breakfast segment on Long Covid on 2nd February 2020, specifically about the false information on recovery through exercise and ‘positive thinking’ for patients …

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DWP Campaign – Update

Message from our Managing Director Sally Callow My Board and I have decided to discontinue our DWP campaign, thank you so much to everyone who has supported us with this endeavour for the past 3 months. This is the document that caused us to launch our DWP campaign, the document was obtained via Freedom of …

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Search Engines- What Do People Want To Know About M.E/C.F.S?

Visual representation of keywords

We know there is an increased interest in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the moment due to the overlapping symptoms of Long Covid and M.E/C.F.S. Obviously, M.E/C.F.S is a disease that we have an immense interest in and are educating professionals about the disease to bring about social change for patients, but most of the …

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DWP Campaign – ‘Mild’ M.E/C.F.S, Employment and Benefits

Stripy Lightbulb CIC has been working hard on a campaign to make the Department of Work and Pensions in the UK aware of the difficulties ‘mild’ (possibly also low-end moderate) M.E/C.F.S patients face in terms of gaining or remaining in employment, and what the alternative means in terms of benefits. One element of this campaign …

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Covid19 Vaccine and Informed Consent

To be clear, we are not anti-vaccine and welcome the Covid19 vaccines as part of the pandemic solution. In this blog, we ask how patients can give ‘informed consent’ when so little is known about the long-term effects of the Covid19 vaccine and how the vaccine will affect patients already diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue …

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Our Complaint About Good Morning Britain re. 20th August Segment on Long Covid

Anyone who follows Stripy Lightbulb on our social media platforms will have seen that we submitted complaints to Good Morning Britain and Ofcom about comments made by Dr. Hilary Jones on 20th August 2020 about Long Covid. To anyone not familiar with the world of chronic illness, and specifically M.E/C.F.S, these comments would have seemed …

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Long Covid – Scaremongering Avoidance or Deliberate Lack of Information?

It came to our attention yesterday that staff of a NHS Trust in the South of England were not aware that Covid-19 could be chronic in some patients. During a Zoom ‘Community Engagement Forum’ conversation, our MD Sally Callow introduced herself as an M.E patient advocate and Long Covid patient. The other Zoom attendees asked …

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Could Coronavirus Cause A Future Spike In M.E/C.F.S Cases?

This blog is entirely hypothetical but it is a situation that is plausible. M.E/C.F.S can be triggered by a virus. The current COVID-19 outbreak is heading towards being a global pandemic and this got us wondering if this will cause a spike in newly diagnosed M.E/C.F.S patients within the next few years? Or at the …

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How Many M.E/C.F.S Patients Are There? What Is The Global Estimate?

Stripy Lightbulb CIC’s e-training courses were extensively researched during their creation and we strive to ensure the information contained within them is kept up to date and as accurate as possible given the shortage of facts and figures surrounding the condition and its wider issues. We have taken the decision to not adopt the findings …

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