People across Hampshire are being invited to share their real experiences of local health and social care, and your voice could help shape how services improve in the years ahead. Stripy Lightbulb CIC is working with Healthwatch Hampshire and Action …
Recently, as we began analysing Ministry of Justice (MoJ) datasets for a current research project, one issue quickly stood out: the way M.E./C.F.S. is categorised within these systems simply didn’t align with what we know about the condition. Instead of …
We’re excited to share that Stripy Lightbulb CIC has just launched a fundraising page on GoodHub! This is a fantastic opportunity for our community and networks to come together, get creative, and support our mission of improving understanding of Myalgic …
Last Friday, our Managing Director Sally Callow proudly represented Stripy Lightbulb CIC at the Cardiff and Vale Carers Assembly, a vibrant and well-attended event hosted by Voices Adfocad, a charity for unpaid carers in Wales. It was a day filled …
Last month, Stripy Lightbulb CIC publicly challenged the Department for Work and Pensions (DWP) over its internal training materials used in Work Capability Assessments (WCA) for individuals with Myalgic Encephalomyelitis (M.E.). These materials promote outdated and harmful narratives that contradict …
As the UK Government continues to attribute rising disability benefit claims to an increase in claimants rather than systemic failures, Stripy Lightbulb CIC is proud to unveil a collaborative campaign that offers a clear, evidence-based alternative. Our new strategic framework, …
The proposed government welfare cuts cast a long shadow, threatening to push already vulnerable individuals and families further into hardship. The urgent need to resist these cuts, to raise our voices in unison and demand a more humane approach, cannot …
Image/table above is from this research study Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating chronic neurological disease affecting an estimated 1.25 million people in the UK. Characterised by post-exertional malaise (a worsening of symptoms after even minimal activity), unrefreshing …
I’m just coming out of a 4-day M.E. Post Exertional Malaise ‘crash’ and am making the most of my tiny bit of energy this morning to write about my personal observations from the past few weeks of living with M.E./C.F.S. …
For years, Stripy Lightbulb CIC has advocated for greater inclusion of people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./C.F.S.) in the workplace. Since 2018, we have worked to ensure that the minority who are able to work receive the reasonable …
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