I’m just coming out of a 4-day M.E. Post Exertional Malaise ‘crash’ and am making the most of my tiny bit of energy this morning to write about my personal observations from the past few weeks of living with M.E./C.F.S. …
For years, Stripy Lightbulb CIC has advocated for greater inclusion of people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E./C.F.S.) in the workplace. Since 2018, we have worked to ensure that the minority who are able to work receive the reasonable …
Two things happened yesterday: Prime Minister Starmer gave a speech on the future of AI and the limitless possibilities it will bring. The Bateman Horne Centre’s research paper ‘COVID-19 Triggers ME/CFS‘ popped up on our news feed. This blog will …
Firstly, Happy New Year! This coming year can’t be as bad as the past 5….can it?! I’m hopeful and will be working to make sure 2025 ends up being a positive year by seeing our work as building blocks. I …
In an increasingly complex world, educating professionals with a duty of care—such as those in healthcare, education, and employment—has never been more critical. These individuals are on the front lines, responsible for the wellbeing of others, and their actions can …
Clarifying Long COVID Subsets: The Importance of Differentiation in Media Coverage of the REGAIN Study As the scientific community delves deeper into understanding Long COVID, it becomes increasingly crucial for the media to accurately differentiate between its subsets. In light …
Dear Members of the Public and Medical Professionals, As we reflect on the recent episode of Dragon’s Den, and subsequent backlash, that shed light on Myalgic Encephalomyelitis, also sometimes called Chronic Fatigue Syndrome (M.E./C.F.S), it’s crucial to recognize the pressing …
We know that Governments simply go from election promise to election promise, whatever works on the doorstep seem to become priorities and manifesto pledges. Long term planning doesn’t seem to be a skill politicians have. The issue of palliative-style care …
There may not be any effective treatments or cures for Myalgic Encephalomyelitis also sometimes known as Chronic Fatigue Syndrome (M.E/C.F.S.), but people living with M.E/C.F.S find themselves on hospital estates for a variety of reasons including appointments for tests for …
COMMENT The Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community already stands at an estimated 1.25 million people in the UK. The majority of whom developed M.E/C.F.S as a direct result of catching COVID19. How much more will our patient numbers …
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