We know that Governments simply go from election promise to election promise, whatever works on the doorstep seem to become priorities and manifesto pledges. Long term planning doesn’t seem to be a skill politicians have. The issue of palliative-style care and Social Care needs were raised within our collaborative work with National Voices who were …
There may not be any effective treatments or cures for Myalgic Encephalomyelitis also sometimes known as Chronic Fatigue Syndrome (M.E/C.F.S.), but people living with M.E/C.F.S find themselves on hospital estates for a variety of reasons including appointments for tests for M.E/C.F.S-related symptoms, tests/treatments for other illnesses, or in their role as a parent/guardian/partner of a …
COMMENT The Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community already stands at an estimated 1.25 million people in the UK. The majority of whom developed M.E/C.F.S as a direct result of catching COVID19. How much more will our patient numbers surge whilst COVID19 is allowed to run unchecked? 2 million by the end of 2024? …
This blog is being written in response to Emily Maitlis’ lecture at the James MacTaggart Memorial Lecture of 24th August 2022, her lecture resonated with us and the issues she raised, in relation to journalism and politics, reminded us of some of the issues the M.E/C.F.S community faces in the UK with the UK Government, …
#MindsetReboot Campaign Exercise is a good thing……Right? Most people need more physical activity……Agreed “There is no situation, there is no age, and no condition where exercise is not a good thing” This was stated by Sir Chris Whitty, Chief Medical Advisor, during a Covid19 press briefing during lockdown in 2020. It has been quoted in …
Our vision is to improve the quality of life of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients. How do we do this? The experience of having the disease is bad enough but patients also have to deal with poor ‘treatment’ and support from those who have a duty of care over them. We are improving the quality …