Social Care Needs, M.E./C.F.S. and Giving Governments 25 Years’ Notice

We know that Governments simply go from election promise to election promise, whatever works on the doorstep seem to become priorities and manifesto pledges. Long term planning doesn’t seem to be a skill politicians have. The issue of palliative-style care and Social Care needs were raised within our collaborative work with National Voices who were …

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NHS Hospitals Are Not Inclusive of People Living With Energy-Impaired Illnesses

There may not be any effective treatments or cures for Myalgic Encephalomyelitis also sometimes known as Chronic Fatigue Syndrome (M.E/C.F.S.), but people living with M.E/C.F.S find themselves on hospital estates for a variety of reasons including appointments for tests for M.E/C.F.S-related symptoms, tests/treatments for other illnesses, or in their role as a parent/guardian/partner of a …

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Populism, Journalistic ‘Balance’, and M.E/C.F.S.

This blog is being written in response to Emily Maitlis’ lecture at the James MacTaggart Memorial Lecture   of 24th August 2022, her lecture resonated with us and the issues she raised, in relation to journalism and politics, reminded us of some of the issues the M.E/C.F.S community faces in the UK with the UK Government, …

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FAO: Exercise Professionals – When Overload Principle Can Be Harmful….

#MindsetReboot Campaign Exercise is a good thing……Right? Most people need more physical activity……Agreed “There is no situation, there is no age, and no condition where exercise is not a good thing” This was stated by Sir Chris Whitty, Chief Medical Advisor, during a Covid19 press briefing during lockdown in 2020. It has been quoted in …

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