For months now, disabled people across the UK have been subjected to an increasingly hostile narrative driven by the DWP. One built on stigma, stereotypes, and a complete disregard for lived experience. We’ve seen damaging rhetoric from public figures and …
A serious issue that has recently come to our attention, which poses a direct threat to the wellbeing of the M.E./C.F.S. community. Through a series of Freedom of Information requests, we have obtained the training materials used by the Department for …
On Tuesday 22nd July, Members of the House of Lords will debate the Universal Credit Bill (previously the Personal Independence Payment and Universal Credit Bill), a piece of legislation that has generated significant concern across the chronically ill and disabled …
Stripy Lightbulb CIC has today published (and sent to policy leads in the DWP) a new policy briefing that highlights a pressing issue in disability benefits assessment: the failure to properly recognise the long-term, disabling nature of Myalgic Encephalomyelitis (M.E.) …
Stripy Lightbulb CIC is appalled by the events surrounding yesterday’s Welfare Reform Bill debate and vote. After nine months of robust, evidence-led advocacy in collaboration with the M.E. community and wider disabled community, we watched in dismay as Clause 5 …
To all Members of Parliament, As you prepare to cast votes on crucial reforms to the UK’s benefit system in the coming month, we write to you with urgency and concern. These are not simply bureaucratic adjustments; they are life-altering …
As Stripy lightbulb CIC, a proud member of the Disability Benefits Consortium (DBC), we know first-hand the profound challenges faced by individuals living with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (M.E./C.F.S.). The fluctuating, often invisible nature of M.E./C.F.S. symptoms – from …
On January 20th, 2025, a critical letter was posted Special Delivery to the office of Rt Hon Rachel Reeves MP, the Chancellor of the Exchequer, with a copy also sent to the Secretary of State for Health and Social Care. …
The clamour for person-centred disability reform rightly echoes across our society at the moment with the UK Labour Government proposing yet more harsh changes to the welfare system. We see campaigns highlighting the potential additional struggles for those at risk …
Image/table above is from this research study Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating chronic neurological disease affecting an estimated 1.25 million people in the UK. Characterised by post-exertional malaise (a worsening of symptoms after even minimal activity), unrefreshing …
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