We know that Governments simply go from election promise to election promise, whatever works on the doorstep seem to become priorities and manifesto pledges. Long term planning doesn’t seem to be a skill politicians have. The issue of palliative-style care …
There may not be any effective treatments or cures for Myalgic Encephalomyelitis also sometimes known as Chronic Fatigue Syndrome (M.E/C.F.S.), but people living with M.E/C.F.S find themselves on hospital estates for a variety of reasons including appointments for tests for …
COMMENT The Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community already stands at an estimated 1.25 million people in the UK. The majority of whom developed M.E/C.F.S as a direct result of catching COVID19. How much more will our patient numbers …
**UPDATE** Days after this announcement was made we had clarification from various NHS Health Boards in Wales and meetings with a member of the Senedd confirmed that this was widespread confusion relating to the word ‘Adferiad’. Adferiad is the name …
In January 2023, Stripy Lightbulb CIC submitted written evidence to the ‘Plan for Jobs and Employment Inquiry’. We did so because, despite Long COVID organisations giving evidence, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome had not been mentioned within this Inquiry. As half …
People living in the UK, over the past 9 months or so, will have seen increasing amounts of rhetoric in the media about ‘economically inactive’ people and their negative impact on the economy. Whilst the Conservative Party have been the …
Temple of Peace and Health, Cardiff – Here we come!# CLICK HERE TO BOOK YOUR PLACE As a Community Interest Company that works for the benefit of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) community, we are delighted to be holding …
As our working year draws to a close, we have been reflecting on our achievements of 2022 and look ahead to hopefully brighter times in 2023. We started the year by warning exercise professionals about Post Exertional Malaise in M.E/C.F.S …
For the past 11 months, Stripy Lightbulb CIC has been working to get M.E/C.F.S included within the official COVID19 narrative in the UK. It is now December 2022 and yet the UK Government has still not acknowledged that COVID19 has …