Unless you have been enjoying a desert island island get-away with no wifi or phone coverage for the past few years and have either not seen any UK press and media, or any communications from M.E charities and advocacy groups, you will know that the National Institute of Care and Excellence (NICE) in the UK, …
As a Community Interest Company (CIC), we concentrate on CPD accredited education rather than advocacy. However, Severe M.E day is a significant event in the M.E (M.E/C.F.S) patient community calendar and is an occasion that should be marked by all involved in working towards progress for the patient community. As the 25% M.E Group state …
Our Managing Director Sally Callow, as a M.E/C.F.S and Long Covid patient, M.E/C.F.S patient advocate, and MD of an online training platform about M.E/C.F.S, is currently collaborating with local public health teams working on their Long Covid strategy. The illnesses are very similar in terms of overlapping symptoms and patient experience (including stigma) and a …
Blog from our Founder and Managing Director Sally Callow for International Women’s Day 2021. Sally, Wow, you have just graduated as a mature student, you did it! Well done you! Today is your 30th birthday, you do not know this yet but in just 9 weeks’ time, your life will be changed forever. All your …
In her capacity as Managing Director of an online training company about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S), our M.D. Sally Callow complained to various organisations including the General Medical Council about a BBC Breakfast segment on Long Covid on 2nd February 2020, specifically about the false information on recovery through exercise and ‘positive thinking’ for patients …
Message from our Managing Director Sally Callow My Board and I have decided to discontinue our DWP campaign, thank you so much to everyone who has supported us with this endeavour for the past 3 months. This is the document that caused us to launch our DWP campaign, the document was obtained via Freedom of …
We know there is an increased interest in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the moment due to the overlapping symptoms of Long Covid and M.E/C.F.S. Obviously, M.E/C.F.S is a disease that we have an immense interest in and are educating professionals about the disease to bring about social change for patients, but most of the …
Stripy Lightbulb CIC has been working hard on a campaign to make the Department of Work and Pensions in the UK aware of the difficulties ‘mild’ (possibly also low-end moderate) M.E/C.F.S patients face in terms of gaining or remaining in employment, and what the alternative means in terms of benefits. One element of this campaign …
To be clear, we are not anti-vaccine and welcome the Covid19 vaccines as part of the pandemic solution. In this blog, we ask how patients can give ‘informed consent’ when so little is known about the long-term effects of the Covid19 vaccine and how the vaccine will affect patients already diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue …
Anyone who follows Stripy Lightbulb on our social media platforms will have seen that we submitted complaints to Good Morning Britain and Ofcom about comments made by Dr. Hilary Jones on 20th August 2020 about Long Covid. To anyone not familiar with the world of chronic illness, and specifically M.E/C.F.S, these comments would have seemed …