For the past 11 months, Stripy Lightbulb CIC has been working to get M.E/C.F.S included within the official COVID19 narrative in the UK. It is now December 2022 and yet the UK Government has still not acknowledged that COVID19 has triggered many thousands of cases of M.E/C.F.S. We have been working to find out why …
This post is an update to our blog post – ‘COVID19 Questionnaire, PEM/PESE, and the Office For National Statistics‘ This is an ongoing issue that we have been working on for a while. Please read the blog mentioned above to see information on our work so far. As we wrote at the bottom of the …
This blog is being written in response to Emily Maitlis’ lecture at the James MacTaggart Memorial Lecture of 24th August 2022, her lecture resonated with us and the issues she raised, in relation to journalism and politics, reminded us of some of the issues the M.E/C.F.S community faces in the UK with the UK Government, …
As our learners will know, there is limited data available on the prevalence of M.E/C.F.S in the UK and internationally. Much has been said about the opportunity Long Covid brings in terms of data collection and research opportunities. Stripy Lightbulb CIC strongly believes that the Office of National Statistics ‘COVID19 questionnaires’, that research Long Covid, …
Hi, This will be an unusual blog post for Stripy Lightbulb CIC in that I am writing about an issue using my own recent personal experience. As a social enterprise, Stripy Lightbulb CIC has been very pleased to see recent announcements from the National Institutes of Health and Care Excellence and Secretary of State for …
We are thrilled to announce that we are a finalist in this year’s Learning Excellence Awards! The Learning Excellence Awards span the training, learning and development activities provided by companies – whether in-house, or through professional training/learning organisations. The nomination and short-listing process has been ongoing since last Summer and next week the winners will …
#MindsetReboot Campaign Exercise is a good thing……Right? Most people need more physical activity……Agreed “There is no situation, there is no age, and no condition where exercise is not a good thing” This was stated by Sir Chris Whitty, Chief Medical Advisor, during a Covid19 press briefing during lockdown in 2020. It has been quoted in …
Our vision is to improve the quality of life of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients. How do we do this? The experience of having the disease is bad enough but patients also have to deal with poor ‘treatment’ and support from those who have a duty of care over them. We are improving the quality …
This blog post is a transcript of this podcast Sally Hello, welcome to Lightbulb Moments. Today I’m talking to Stripy Lightbulb CIC Director Chantelle Martin. In her day job, Chantelle is an Occupational Therapist, but she has studied for an Exercise and Sports Science degree. She has also taken additional exercise training courses level three …
Unless you have been enjoying a desert island island get-away with no wifi or phone coverage for the past few years and have either not seen any UK press and media, or any communications from M.E charities and advocacy groups, you will know that the National Institute of Care and Excellence (NICE) in the UK, …