DWP Campaign – Update

Message from our Managing Director Sally Callow My Board and I have decided to discontinue our DWP campaign, thank you so much to everyone who has supported us with this endeavour for the past 3 months. This is the document that caused us to launch our DWP campaign, the document was obtained via Freedom of …

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Search Engines- What Do People Want To Know About M.E/C.F.S?

Visual representation of keywords

We know there is an increased interest in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the moment due to the overlapping symptoms of Long Covid and M.E/C.F.S. Obviously, M.E/C.F.S is a disease that we have an immense interest in and are educating professionals about the disease to bring about social change for patients, but most of the …

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DWP Campaign – ‘Mild’ M.E/C.F.S, Employment and Benefits

Stripy Lightbulb CIC has been working hard on a campaign to make the Department of Work and Pensions in the UK aware of the difficulties ‘mild’ (possibly also low-end moderate) M.E/C.F.S patients face in terms of gaining or remaining in employment, and what the alternative means in terms of benefits. One element of this campaign …

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Covid19 Vaccine and Informed Consent

To be clear, we are not anti-vaccine and welcome the Covid19 vaccines as part of the pandemic solution. In this blog, we ask how patients can give ‘informed consent’ when so little is known about the long-term effects of the Covid19 vaccine and how the vaccine will affect patients already diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue …

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COVID-19 and M.E/C.F.S-Affected Employees

What can M.E/C.F.S patients do when M.E/C.F.S is not acknowledged as being a neurological condition by many medical professionals, the M.E/C.F.S patient community is not considered an ‘at risk’ group during a pandemic, but patients are well aware that any virus can have serious implications on their own M.E/C.F.S? Two things have been on our …

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Could Coronavirus Cause A Future Spike In M.E/C.F.S Cases?

This blog is entirely hypothetical but it is a situation that is plausible. M.E/C.F.S can be triggered by a virus. The current COVID-19 outbreak is heading towards being a global pandemic and this got us wondering if this will cause a spike in newly diagnosed M.E/C.F.S patients within the next few years? Or at the …

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How Many M.E/C.F.S Patients Are There? What Is The Global Estimate?

Stripy Lightbulb CIC’s e-training courses were extensively researched during their creation and we strive to ensure the information contained within them is kept up to date and as accurate as possible given the shortage of facts and figures surrounding the condition and its wider issues. We have taken the decision to not adopt the findings …

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Occupational Therapy and M.E/C.F.S

As you will no doubt be aware, Stripy Lightbulb CIC attended The OT Show at the end of November 2019. Our stand was certainly a hive of activity and we were very pleased with the number of powerfully positive conversations we had with Occupational Therapists during the two-day event. So many OTs admitted to not …

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