How Many M.E/C.F.S Patients Are There? What Is The Global Estimate?

Stripy Lightbulb CIC’s e-training courses were extensively researched during their creation and we strive to ensure the information contained within them is kept up to date and as accurate as possible given the shortage of facts and figures surrounding the condition and its wider issues. We have taken the decision to not adopt the findings …

Read moreHow Many M.E/C.F.S Patients Are There? What Is The Global Estimate?

Occupational Therapy and M.E/C.F.S

As you will no doubt be aware, Stripy Lightbulb CIC attended The OT Show at the end of November 2019. Our stand was certainly a hive of activity and we were very pleased with the number of powerfully positive conversations we had with Occupational Therapists during the two-day event. So many OTs admitted to not …

Read moreOccupational Therapy and M.E/C.F.S

What About OUR Children In Need? – Do We Need To Do More?

Why #StripyCiN? This November, Stripy Lightbulb CIC dedicated 2 weeks to educate people about Myalgic Encephalomyelitis otherwise known as Chronic Fatigue Syndrome (M.E/C.F.S) for Children in Need, and, it seems, we were the only M.E/C.F.S organisation to use the opportunity. We did some research, and as far as we can tell, no M.E/C.F.S charity has …

Read moreWhat About OUR Children In Need? – Do We Need To Do More?

Andrea and An-nel’s M.E/C.F.S story

During Children in Need 2019, we are raising awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. We are taking this opportunity to highlight that M.E/C.F.S is a global issue, if not a global crisis. There are around 25,000 children and young adults in the UK, statistics as to the prevalence of M.E/C.F.S in all age groups are …

Read moreAndrea and An-nel’s M.E/C.F.S story

Response to the House of Commons Education Committee Report on SEND

Special Educational Needs and Disabilities (SEND) is a topic we care about at Stripy Lightbulb CIC as children with M.E/C.F.S fall under the SEND umbrella within their learning environment. We have been waiting for this report to be published and are not surprised to read some of the issues that have been highlighted. Extract from …

Read moreResponse to the House of Commons Education Committee Report on SEND

Don’t AssuM.E – Merchandise

Today, we are launching our new merchandise range – Don’t assuM.E. Assumptions about Myalgic Encephalomyelitis (otherwise known as Chronic Fatigue Syndrome) are rife, create stigma, and can cause additional problems for the global M.E/C.F.S community. Some of these false assumptions are listed below: Don’t assuM.E that you know what M.E/C.F.S is because you read about …

Read moreDon’t AssuM.E – Merchandise

‘Just Google It’

It is widely accepted that people use Dr. Google to try to diagnose their health complaints, look for advice, or seek signposting for support. However, should Google be used by professionals with a duty of care over Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S) patients to establish what the condition is and how they should be supporting …

Read more‘Just Google It’

When Will They Learn?

The condition Myalgic Encephalomyelitis (M.E), otherwise known as Chronic Fatigue Syndrome (C.F.S), has a long and complex history. This is covered within our e-training and is explained in simple terms as it is all a bit of a mess. The complexities mean that the current situation is not working for patients. There are so many …

Read moreWhen Will They Learn?

Suicide and M.E/C.F.S

For a number of years, it has been said amongst the global M.E/C.F.S community that there is an increased risk of suicide amongst our patient population. One research paper responsible for this belief stated; The researchers noted that the overall risk of death in patients with chronic fatigue syndrome seemed no different from the risk …

Read moreSuicide and M.E/C.F.S

Admit It So That We Can Progress

Many of the current problems experienced by the global M.E/C.F.S community are exacerbated by the many medical professionals who might recognise they have behaved appallingly to patients, quite possibly even harmed them, but are too ashamed or embarrassed to admit they got it wrong. As is said in this #StandUpForGigi video. One medical profession that …

Read moreAdmit It So That We Can Progress