We are inviting healthcare professionals to anonymously share their insights via a short survey exploring a key challenge in the care of patients with severe and very severe ME/CFS.
Survey deadline: 12.00pm, Tuesday 29th October
👉 Complete the 4 minute survey HERE
Why this matters:
Remote care is often the safest option for patients with severe ME, helping to avoid post-exertional malaise (PEM). However, clinicians frequently report feeling professionally exposed when managing risk without direct contact. There is currently no national guidance on how to reconcile this paradox, where what is safest for the patient may feel least safe for the clinician.
This survey is part of our BED for Severe ME annual campaign, a collaboration between social enterprises Stripy Lightbulb CIC and ME Foggy Dog working to improve understanding, pathways, and support for those living with the most disabling forms of M.E. This particular project aims to identify practical solutions to systemic barriers and promote safer, more equitable care.
Your anonymous reflections will help shape future recommendations and contribute to a more informed, compassionate approach to remote care.
We’d be grateful if you would share this survey within your professional networks.
Thank you for your time and expertise.
The team at Stripy Lightbulb CIC.
