As we step into 2026, we’ve intentionally chosen a slower, more reflective start. After nearly eight years of continuous work, it felt important to pause and take stock of where we are, what we’ve achieved, and where our efforts have fallen short. One thing has become unmistakably clear: despite years of evidence, advocacy, and lived experience, the NHS remains reluctant to learn, and successive governments continue to resist the changes our community urgently needs.
Since 2018, we have poured immeasurable time, energy, and determination into pushing for progress. That work has never stopped, but the ongoing resistance has prompted us to rethink how we move forward. This year marks the beginning of a new phase for Stripy Lightbulb CIC, one shaped by realism, renewal, and a return to our core purpose.
Our long‑standing advocacy work remains important to us. Campaigns such as #SCCForME, #MPDoYourJob4ME, the M.E. Friendly Hospital Charter, and our efforts to reform the benefits system will continue, though more quietly and steadily than before. These initiatives have always been long‑term commitments, and all information about them remains available on our website.
This shift in focus coincides with changes within our Board. Two Directors have recently stepped down, and we have welcomed a new member into the organisation. As we shared publicly:
“We want to extend our sincere thanks to our former Directors for their dedication, guidance, and the role they played in shaping Stripy Lightbulb CIC into the organisation it is today. We wish them every success in their future endeavours. Their contributions have left a lasting impact, and we’re grateful for the time, energy, and expertise they shared with us.”
Change is never easy, but it brings opportunity. We are genuinely excited about the fresh perspective and valuable experience our new Director brings. Their arrival strengthens our ability to refocus and move forward with clarity.
As 2026 unfolds, we are intentionally narrowing our focus. We will not be taking on any new advocacy projects beyond those already in progress. Instead, we are returning to the foundations on which Stripy Lightbulb CIC was built:
- Tackling stigma
- Raising research funding
- Educating professionals
These are the areas where we can make the most meaningful impact, and where our work continues to be urgently needed.
This new chapter is both reflective and hopeful. We remain committed to our mission, our community, and the change we know is possible, even when progress feels slow.
Thank you, as always, for your continued support. It means more than we can express, and it sustains us as we move into this renewed phase of our journey.
