Our Managing Director Sally Callow, as a M.E/C.F.S and Long Covid patient, M.E/C.F.S patient advocate, and MD of an online training platform about M.E/C.F.S, is currently collaborating with local public health teams working on their Long Covid strategy. The illnesses …
Blog from our Founder and Managing Director Sally Callow for International Women’s Day 2021. Sally, Wow, you have just graduated as a mature student, you did it! Well done you! Today is your 30th birthday, you do not know this …
In her capacity as Managing Director of an online training company about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (M.E/C.F.S), our M.D. Sally Callow complained to various organisations including the General Medical Council about a BBC Breakfast segment on Long Covid on 2nd February …
Message from our Managing Director Sally Callow My Board and I have decided to discontinue our DWP campaign, thank you so much to everyone who has supported us with this endeavour for the past 3 months. This is the document …
We know there is an increased interest in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the moment due to the overlapping symptoms of Long Covid and M.E/C.F.S. Obviously, M.E/C.F.S is a disease that we have an immense interest in and are educating …
Stripy Lightbulb CIC has been working hard on a campaign to make the Department of Work and Pensions in the UK aware of the difficulties ‘mild’ (possibly also low-end moderate) M.E/C.F.S patients face in terms of gaining or remaining in …
To be clear, we are not anti-vaccine and welcome the Covid19 vaccines as part of the pandemic solution. In this blog, we ask how patients can give ‘informed consent’ when so little is known about the long-term effects of the …
Anyone who follows Stripy Lightbulb on our social media platforms will have seen that we submitted complaints to Good Morning Britain and Ofcom about comments made by Dr. Hilary Jones on 20th August 2020 about Long Covid. To anyone not …
It came to our attention yesterday that staff of a NHS Trust in the South of England were not aware that Covid-19 could be chronic in some patients. During a Zoom ‘Community Engagement Forum’ conversation, our MD Sally Callow introduced …
What can M.E/C.F.S patients do when M.E/C.F.S is not acknowledged as being a neurological condition by many medical professionals, the M.E/C.F.S patient community is not considered an ‘at risk’ group during a pandemic, but patients are well aware that any …