Occupational Therapy and M.E/C.F.S

As you will no doubt be aware, Stripy Lightbulb CIC attended The OT Show at the end of November 2019. Our stand was certainly a hive of activity and we were very pleased with the number of powerfully positive conversations …

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What About OUR Children In Need? – Do We Need To Do More?

Why #StripyCiN? This November, Stripy Lightbulb CIC dedicated 2 weeks to educate people about Myalgic Encephalomyelitis otherwise known as Chronic Fatigue Syndrome (M.E/C.F.S) for Children in Need, and, it seems, we were the only M.E/C.F.S organisation to use the opportunity. …

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Andrea and An-nel’s M.E/C.F.S story

During Children in Need 2019, we are raising awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. We are taking this opportunity to highlight that M.E/C.F.S is a global issue, if not a global crisis. There are around 25,000 children and young adults …

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Don’t AssuM.E – Merchandise

Today, we are launching our new merchandise range – Don’t assuM.E. Assumptions about Myalgic Encephalomyelitis (otherwise known as Chronic Fatigue Syndrome) are rife, create stigma, and can cause additional problems for the global M.E/C.F.S community. Some of these false assumptions …

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‘Just Google It’

It is widely accepted that people use Dr. Google to try to diagnose their health complaints, look for advice, or seek signposting for support. However, should Google be used by professionals with a duty of care over Myalgic Encephalomyelitis/Chronic Fatigue …

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When Will They Learn?

The condition Myalgic Encephalomyelitis (M.E), otherwise known as Chronic Fatigue Syndrome (C.F.S), has a long and complex history. This is covered within our e-training and is explained in simple terms as it is all a bit of a mess. The …

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Suicide and M.E/C.F.S

For a number of years, it has been said amongst the global M.E/C.F.S community that there is an increased risk of suicide amongst our patient population. One research paper responsible for this belief stated; The researchers noted that the overall …

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Admit It So That We Can Progress

Many of the current problems experienced by the global M.E/C.F.S community are exacerbated by the many medical professionals who might recognise they have behaved appallingly to patients, quite possibly even harmed them, but are too ashamed or embarrassed to admit …

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